Crimenutely.
I’m not much of a fan of this woman, if for no other reason than of that bloody Titanic song that (just like the movie), went “on and on,” seemingly without end and forever.
But I cannot have other than heart for her. Just a year ago, she announced that she’d been diagnosed with an incredibly rare, incurable, disease called (these days) “Stiff Person Syndrome.” Only a few short years ago, it was known as “Stiff Man Syndrome,” but no matter; that’s not the larger point here, and that is another story for another time.
What actually–you may ask–is the larger point here? Well, this:
Progressive encephalomyelitis with rigidity is a rare condition characterised by progressive rigidity of both limb and truncal muscles with brainstem involvement, myoclonus, and spasms. Most patients have died within 2–3 years.
Here’s her original announcement of her diagnosis, in December of 2022:
Prayers, brave lady.
Your heart will go on. And on. And on.
And–no matter how annoying I find that damn song–that is a very good thing.
